Why is she shaking???

July 8, 2012 Sunday

I'm combing Raegan's hair in hopes of getting out the door on time for church. I'm spraying her hair with a water bottle. George says "Why is she shaking?" I don't know I reply not stopping what I'm doing. He says Look she can't hold her hands still. I stop and turn her to face and then I see it. Hair clip in her hands and her hands shake  ???  I look at her face and want to pass out. There.It.Is the 'chin jerk' there is no real good explanation for it but her chin dimples in a spot and a way that is not humanly possible to duplicate and happened before EVERY seizure with her Infantile Spasms. As SOON as her chin jerks her hands shake. I snatch her to my chest. This CAN NOT be happening! Six times that day I watch and video the same thing happening. There are no words to describe what we feel. I spend the rest of that night wide awake doing what I know I shouldn't but running every possible scenario through my head of what we will be told when I call the dr's office in the morning...